Sunday, February 8, 2015

What to say and what not to say in times of trials.

Bookmark this page.  Refer to it often.  Before you say anything or write anything in response to what someone is going through, pause and think.  I don’t say this to boast but rather to caution.  If you know someone who has recently lost a parent, spouse, or child…  If someone has recently been diagnosed with a devastating condition or has a child, spouse, or parent diagnosed, the following are things I would strongly encourage you to not say.  I write from experience as someone whose husband was diagnosed as terminal, walked the journey with him, and lived beyond his passing.  But this is not just a chiding or a list of don’ts.  I am also providing humbly suggested alternatives of things that are helpful.

DON’T

Don’t post or write about someone you know or someone you saw advertised with a similar condition who survived.  Every patient is unique and different.  Each circumstance is unique.  What you feel is an attempt to offer hope may be perceived as, “Why did they get better and I won’t?” It can cause more doubts, more questions, and sometimes even anger.

DO

Do offer your support and your prayers.  Prayers for comfort, mercy, peace, and healing are welcomed and felt.

DON’T

Don’t say, “I know exactly how you feel / what you are going through.”  No. You don’t.  And that’s okay.  Each person, each relationship, is special and beautiful and one-of-a-kind.  Your experience was YOURS.  This is theirs.  Their emotions, their feelings, their relationship, and how they choose to walk this out is theirs and theirs alone.  This is their journey, not yours.  And please, PLEASE do not insert your pain into their path.  Don’t regale them with your own story and force them to comfort you.  Especially if your story has not been asked.

DO

Offer your sympathy and empathy.  Say, “This must be really hard for you.  I’m sorry you have to walk this.”  And MAYBE… “I have faced similar circumstances if you ever want to talk about it or cry on my shoulder.”

DON’T

Have you tried…oils, vitamins, massages, acupuncture, etc?  Guess what?  If you’ve thought it, they have probably either tried it or researched it or asked their specially trained physician about it.  If you are not trained in the medical sciences, don’t offer medical advice, ESPECIALLY unsolicited.  That can make a person feel like you think they are stupid, are incapable, that they have picked the wrong treating team, or are not trying hard enough.  It can, again, result in resentment and anger.

DO

Do tell them you are praying not only for the person and their loved ones, but also for the doctors.  Pray for wisdom for all of them.  These decisions are not faced lightly.  And I know one thing for certain from experience…DOCTORS ARE FIXERS AND THEY HATE TO FEEL UNABLE TO FIX.  When Nathan fell ill and was receiving his diagnosis and prognosis, the doctor couldn’t even hardly choke out the words “stage IV” and “terminal.”  He kept using vague terms that didn’t give us information until we continued to press for details.  And he was an excellent physician.  But it pained him so deeply to feel unable to solve this issue.  So, I promise you, if it will help, cure, provide relief, or extend life, doctors will recommend or try it.  Scout’s honor!

DON’T

Don’t tell someone what you would do in their situation.  If the words, “Well, if it were me…” begin to come out of your mouth, just stop.  It isn’t you.  And you. Don’t. Know.  You don’t know what you will do until you are in the trenches.  Illnesses are kind of like parenting… everyone’s an expert until they have one.  All the theories and plans in the world fly out the window when you are literally talking about life and death, life or  death, and life beyond death.

DO

Pray. Pray. Pray.  Pray for wisdom and direction.  Pray for peace once decisions are made.  These are not easy choices that are being made.  And sometimes choices are made that go against our very nature.  And sometimes there is no choice to be made.  Walk beside them, but don’t ever judge or second-guess their decisions.  This is hard enough without that hanging over their heads.

DON’T

This last one may seem odd… but here it is anyways.  Please don’t say, “What can I do to help?”  They know what you mean and what you are trying to do.  But they are so befuddled, confused, and overwhelmed, they barely can recall their names or the last time they ate.  Now, on top of all the decisions they are making and coming to terms with, they have to come up with things for you to do?  Nope, sorry, not gonna happen.

DO

If you want to help, BE SPECIFIC. Offer to organize a meal train or bring a meal.  Offer to clean the house or walk the dog.  Offer to take the kids to or from school or activities to allow a small semblance of normal routine.  Wash and fold the laundry. Mow the lawn if you see it’s getting tall.  Whatever you have to give, wherever your talent lies, offer it specifically.  It is SO hard to ask for, much less accept help.  But when the chips are down, it is such a relief to not have to worry about all the little things that fill time and life.  Be specific in what you have the time and ability to do.  Then follow through on your commitment.  That is such a blessing and a tangible expression of love.

DON’T

Don’t beat yourself up if you have done any of the previously mentioned things.  Just be mindful in the future.  If you’ve rubbed someone the wrong way, apologize and make amends.  Don’t take it personally.  They are so far beyond stretched and stressed, they may not yet know how to respond or react.  Just show love, have patience, and be gracious.